Monday, June 9, 2014

A Former Model Speaks Out On Vaccines, Jenny McCarthy

By Liskula Cohen (with Matthew Rozsa*)

I've never met Jenny McCarthy, but I'm certainly familiar with her crusade against vaccines. For better or worse, we live in a society where celebrities can develop large followings and convince millions of people to make major life decisions based on their advice. When they use that influence to spread credible information about important issues, they perform a valuable public service. On the other hand, when they push positions that have been discredited by the scientific community, they aren't just wasting an opportunity to do good, but are being dangerously irresponsible.

Like many expectant mothers, I felt quite vulnerable when I was pregnant. Consequently, when a friend who'd had triplets told me that she blamed vaccines for causing one of her daughters to became autistic while her two sisters did not, I became afraid. Because I didn't have any reliable statistics of my own, I began reading blog posts - too many, as it turned out. By the time my child was born and due to be vaccinated, I was scared stiff. While McCarthy herself hadn't made me feel this way, the anti-vaccination agenda that had been largely popularized (although she has recently stopped calling it “anti-vaccine,” which I’ll address later) through her campaign had reached me through someone I trusted.

Then I did something I wish all anti-vaccination advocates would do; I looked at the science.



For one thing, I found that the entire anti-vaccine movement began with a paper published by a scientist named Andrew Wakefield in 1998. It is worth noting that a year earlier, Wakefield had filed a patent for a new measles vaccine that he hoped would replace the existing one. Despite this obvious conflict of interest, Wakefield's article presented a study that alleged a link between the MMR vaccine and various gastrointestinal and developmental disorders (including autism). His argument has since then been completely discredited: One scholar found that Wakefield had manipulated the data used in his study; ten of the thirteen scientists who contributed to Wakefield's paper have withdrawn their work; the journal which first published the article has since then retracted it; and an investigation launched by the UK's General Medical Panel determined that Wakefield had not only reached his conclusions "dishonestly and irresponsibly," but had performed tests on children that weren't in their best clinical interest and showed "callous disregard for the distress and pain" they would suffer.

As if that hadn't been persuasive enough, I found that the established scientific community overwhelmingly agrees that immunizations have not been linked to autism, from studies published in Public Library of Science One and The Journal of Pediatrics to the positions asserted by the Centers for Disease Control and Prevention and the Division of Infectious Diseases in the Children's Hospital of Philadelphia. Unfortunately, many parents are predisposed to be suspicious of the scientific establishment, allowing McCarthy to continue spreading Wakefield's erroneous message. As a result, more than 130,000 preventable illnesses have been spread since 2007, with almost 1,400 of them resulting in deaths.
Parents are encouraged to use the regular vaccine schedule, which has been approved by the CDC, American Academy of Pediatrics (AAP), and the American Academy of Family Physicians. Although it has not been studied or approved by public health groups, another alternative is the Dr. Sears alternative vaccine schedule, which Sears explains is meant to alleviate the fears of parents still somewhat swayed by McCarthy's rhetoric by spreading shots over a longer period of time. "If some of the theoretical problems with vaccines are real, this schedule circumvents most of them." Sears writes. "If the problems aren’t real, then the only drawback is the extra time, effort, and cost for the additional doctor’s office visits." After talking with my daughter's pediatrician, I chose the Sears slow schedule (which she had used for her own four children), happy that I had combined my own judgment and instincts with the opinion of a qualified medical professional.

Indeed, I am hardly a shill for Big Pharm. I’m an Attachment Parent, exclusively breast fed my daughter for a year, still baby wear, and co-slept for a year. In addition to traditional medicine, I also use natural medicinal and homeopathic practices. When it comes to my daughter’s body, I rely on good common sense as much as possible. That’s why, even though I’m still somewhat nervous about vaccines, I remember that the thought of losing my daughter scares me far more.

I am not writing any of this to attack McCarthy personally. Recently she has made efforts to rehabilitate her image, such as a Chicago Sun-Times op-ed last month in which she declared that she is “in fact, ‘pro-vaccine’,” is “wrongly branded as ‘anti-vaccine’,” and - per a Time Magazine quote of hers from 2009 - is simply “demanding safe vaccines. We want to reduce the schedule and reduce the toxins.” Of course, she omitted the next line of the quote from that interview, in which she declared that “If you ask a parent of an autistic child if they want the measles or the autism, we will stand in line for the fucking measles.” Even though she is admitting that vaccines are important, she has yet to retract her longstanding assertion that there is a link between certain vaccines and autism… one that, it cannot be repeated enough, has not been scientifically proved.

In short, I don't doubt that McCarthy only wants what she believes is best not only for her own children, but for children everywhere. The problem is that the science shows her inaccuracies are a public health risk. Already lives have been damaged, even lost, because of that pseudo-scientific campaign. I can't imagine how terribly she will feel if an outbreak occurs because of people who protest, "But Jenny McCarthy said I was doing the right thing!"


* - Matthew Rozsa, the co-author of this piece, has autism and has written about it extensively.

I Was A Cyberbullying Victim and I Am Reclaiming My Voice

by Liskula Cohen (with Matthew Rozsa)

This is the story of how I reclaimed my life. Unfortunately, to tell that tale, I need to first explain how my struggle started.

Back in 2009, right as the nation's attention was beginning to turn to the problem of cyberbullying, I was the subject of defamatory attacks by a 29-year-old Fashion Institute of Technology student. Because this woman created her website anonymously, I had no way of asserting my legal rights, even as my high-profile modeling career - which had included appearances in and on the covers of magazines like Vogue, Elle, and Flare - was damaged by the lies. Instead of feeling powerless, I stood up for myself by suing Google to unearth her identity. After a Manhattan judge agreed that libelous speech is not protected by the First Amendment, the website was taken down and victims of cyberbullying won one of their first landmark legal cases.

You may notice that I have not mentioned either the woman's name or the details of her attacks. I have done this for two reasons:

1. Practically speaking, identifying this woman and the specifics of what she said could increase the likelihood that material involving her actions will appear on Google searches of my name. Since many of you will be understandably curious, I will mention that her attacks consisted entirely of misogynistic slurs. Aside from that, I hope you will respect my wishes (especially if you've ever been the victim of false rumors) and not help further circulate her cruel lies – which were found to be baseless in a court of law - by trying to dig them up.

2. This is not the story of the woman who bullied me. This is, forever and unchangeably, MY story - and how I took control of it.

After the Google lawsuit I took a long hard look at my life. I knew I had accomplished something really positive and was proud of myself. At the same time, I couldn't stop wondering: When is my life going to be about me and what I need? The personal gratification of my lawsuit didn't last long, but many scars remained. I found myself hiding from the internet, avoiding telling people my real name (not out of embarrassment but from a desire to begin a fresh new life with no questions to answer), and getting sick to death of talking about it. Even though I have never met anyone who has told me face-to-face that they disagree with what I did, I badly wanted to start over.

There were two things I did know: I wanted to be a mother and I wanted to leave New York City. Hence, after visiting my parents' home in the Sunbelt on Thanksgiving 2010 and thinking "I could live here," I threw caution to the wind. On January 6th, with all of my worldly possessions stuffed into luggage, I left the city I had called my home for nearly a quarter-century.

I have always loved the sun, so my decision made sense in that respect. Even better, I didn't know anyone other than my parents in the area, so I had to start off at square one. The challenge excited me; I knew that I was strong, smart, and independent, so I was confident that I could do this. A new life stretched out ahead of me.

Thanks to my experience in fashion, I received an offer from a group of investors in the optical industry who asked me to help them with a bold business venture. The company, called FrontRowEyewear, is an e-commerce site (tentatively scheduled to launch on July 1st) that sells Rx glasses and sunglasses. I buy the frames, conduct research on the online optics industry, and manage development of the website.

While this is how I reinvented myself professionally, there is one individual responsible for helping me rediscover myself as a human being – my daughter. It was excruciatingly difficult for me to love or trust again after the Google lawsuit, and having a child completely changed that. Words cannot express how much she means to me: Her smile is intoxicating. I am blown away by her intelligence, by how quickly she learns. She has given me a new lease on life, instilled in me a sense of renewed purpose, and inspires me every second of every day to be the best mother I can be. FrontRowEyewear may have given me a new living, but my daughter made me want to live again.

As I settled down in my new life, though, I would see reminders of the past in the news. In my former hometown, New York City, there was a gay Rutgers student who committed suicide by jumping into the Hudson River after experiencing homophobic cyberbullying. Several time zones away, in Tucson, AZ, four teenagers killed themselves in 2012 due to cyberbullying. The statistics were sobering: In 2011, the National Crime Victimization Survey found that 9% of students from 12 to 18 reported being cyberbullied; two years later, the Urban Institute revealed that 17% of students had been victims of cyberbullying. The numbers were even higher for young women, 23% of whom reported to have been bullied online (more than twice as high as the 11% figure for young men). Experts also better understand the often devastating effects of cyberbullying, such as "lowering self-esteem, increasing depression and producing feelings of powerlessness."
That’s another reason why I’m reemerging: As someone who was a very public victim of bullying, I hope that my story can comfort and encourage others who are suffering from bullying right now. I want to remind them that, no matter how bad things may seem right now, things can get better. You can’t be afraid to stand up for yourself and, just as importantly, you must be strong enough to remain your own person, to not let yourself be defined by the hurtful words and actions of people in your past.

I can say this because it has worked for me. A new phase in my life has begun and I am eager to come forward with a new Liskula Cohen. There are opinions that I have on a number of social, political, and cultural issues - many of them unrelated to cyberbullying and stemming from the experiences I have had since 2009 - and I am eager to see what I can contribute to our online dialogue about them.

Five years ago, I reclaimed my life. Now I am reclaiming my voice.